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HELPFUL RESOURCES

Prepare for your upcoming doctor visits.

Getting ready to talk with your doctor? We have tools to help with that.

It can be tough to remember exactly what to talk about at the doctor’s office. To ensure you cover everything, it can be helpful to use the resources below. You can bring these with you to your next appointment.

Resources for people who may have bronchiectasis:

BE Prepared Guide

If you suspect you may have , use these questions to see if it could be BE and begin a conversation with a pulmonologist.

Understanding BE Brochure

Use this brochure to gain a deeper understanding of BE and its impact on your lungs, along with tips, tools, and important questions to ask your doctor.

Resources for people diagnosed with bronchiectasis:

BE Symptom Snapshot Tool

Use this tool to help you keep track of when your BE symptoms get worse so you can talk to your doctor about possible BE flares and how you’ve been doing between appointments.

BE Doctor Discussion Guide

If you’ve been diagnosed with BE, use these important questions as a guide to prepare for your next doctor’s appointment.

Locate a specialist or bronchiectasis health center.

Some doctors see more patients with BE than others. That’s why it may be helpful to find a —such as a —or a BE health center that has experience with BE.

Below are links to help you find BE care near you:

Reach out to others in the bronchiectasis community.

Living with any lung disease can be challenging—especially one as complex as BE. There are online and in-person communities of people who understand what you’re going through. Explore some groups below:

Bronchiectasis Info & Research has local support groups that hold regular meetings, as well as online forums for patients, loved ones, physicians, and researchers.

Bronchiectasis and NTM 360 helps address the unmet needs of the BE and lung disease communities.

Important questions for your next doctor’s visit

Questions to ask if you think you may have BE

  • Why are my symptoms not getting better despite the treatment I take for my existing respiratory condition?

  • Should I be concerned that I continue to have flares?

  • I have seen a change in the mucus produced (amount or color) when I cough. Should I be concerned?

General BE questions

  • Living with BE makes me feel (describe your feelings). BE makes it hard to (describe an activity). What can I do differently to manage my BE?

  • How often should I check in with you, and how often do I need to schedule follow-up visits?

  • What are our goals? What will we measure to track how I’m doing?

Questions about BE flares

  • I think I’ve had about (insert number) BE flares since my last visit. Is there anything I can do to help reduce them?

  • I seem to have BE flares when (insert triggers), and it forces me to (insert how you cope). Is there anything we can do to manage my condition?

  • What can I do if my BE flares are starting to happen more often?

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